Up until two weeks ago, Mom was able to get herself up, dressed, to the bathroom, down to the dining room at AL, to events etc. Although she was weak and unsteady she was pretty much independent. Then she stood up and fell. She bumped her head a little so they sent her to the ER. Although she didn't really hurt herself, she spent the night there, and fell again there. I'm wondering if she didn't have an "event" which caused it all. After that she was so weak she couldn't stand on her own and couldn't stay in AL so for the past 2 weeks she has been in a nursing home. We thought she might be able to be rehabbed and return to AL. But she fell again there, and hit her head requiring stitches this time. She has practically stopped eating, tries to get up every five minutes at night and sleeps on and off most of the day, saying leave me alone, and pretty much out of it (they have to give her a tranquilizer to keep her from being agitated so I suspect that is why she is sleepy). Is this the way it progresses at the end? I'm praying she is not suffering and isn't aware of what it happening. I sit there for hours with her, but she barely knows I'm there and five minutes after I leave she doesn't remember.
My best to you and your mom.
They took x-rays and a CT scan of her head when she fell about 10 days ago. She seems to be improving over the past few days and eating a little. Its hard to know with her. They tell me she is very very stubborn. At 101, the doctor has advised she is not strong enough for any surgery and we have a DNR and DNI. Of course we have authorized she be given antibiotics, etc for illness but no extreme treatments. The woman in the room with her is also 101. She has been there for a year. She lies in bed and makes noises and jabbers all day, making no sense, not seeing any of us. We don't want Mom to end up like that.
I asked about hospice because I was wondering if she was put on that, whether her Tricare health insurance would pick up some of the cost of the nursing home. Its awfully expensive.
She has in the last two weeks been refusing to let them shower her, sometimes she won't even allow them to change her when she is wet. They tell me they cannot force her, which I understand. Over the last ten days, she gets delusional, mostly at night, and starts calling me and my sister to come get her from college, that she doesn't want to sign up for another semester. All sorts of crazy stuff like that. It is so hard to explain to her that I cannot come and pick her up. My stepdad stays upset, worrying about her. He is living with us and has been ill, so he hasn't been able to visit in a week. Her physician wants to up her Xanax, and has mentioned mood altering medications ???? (which I know nothing about).
At what point can you involve Hospice?
Gotta laugh once in a while too. Tonight she called 911. A friend of mine on the police force went by to see her. She told him she wanted a ride home from college. Hoping she doesn't make that call a habit.
paradise - absolutely - our LO with dementia of any kind have brain diseases from which they will not recover and they will decline. These diseases are terminal. Of course that does not mean you do not look out for things like UTIs and other ailments that affect behaviours. Mother has vascular dementia and is loosing mobility. Some are saying - she is not using it so she is loosing it, and I say no. She has walked a lot all her adult life and she would be now if she could. She is loosing it due to the effects of the vascular dementia on her brain.
Confused about this. I emailed the doctor but no response yet.
Any suggestions are greatly appreciated. Praying for all of you who are also going through this horrid situation.
Falls are terrible. So many friends tell me that a fall took the independence from a loved one. I'm very careful myself.
AL is less than half the price of a nursing home, so if drugs will keep her there longer, I'd try but it does sound like your mother needs some oversight. AL will tell you when they think your mother needs more care than they can give. With my mom, she refused to use the walker and fell a couple of times. At that point, they realized she needed someone with her all the time and shouldn't be liable if she fell and really hurt herself all because she refused a walker or help. Mom would still be there if it weren't for the last fall she took which weakened her. Also, she wasn't eating so she was weak from that. In the NH she is watched constantly to keep her from getting up and falling and given nutrient drinks, etc all day (which an AL doesn't do - it is for people who need some assistance, not 24/7 oversight) But, a NH is really expensive!
Yikes nursing homes are expensive. I thought the cost of $306 room rate per day was reasonable, but then there are the general costs not provided in that room rate... such as $900 per month to have an air mattress.... $540 for incontinence supplies.... $120 for Geri-recliner rental.... $5 per Boost... etc.
What is sad is that my parents were always very frugal with their money, saved big time. So the money saved is now going into the nursing home. If my parents had shopped until they dropped and never saved, Medicaid would be paying and Mom would be having the same identical care. Too bad Medicaid isn't available for all elders... but I know that would bankrupt the States.