My husband was diagnosed in Feb 2015 but was exhibiting signs since Feb 2010. I've been his only caretaker and had to quit work Jan of 2016 so I can watch him full time. He needs help bathing, dressing, toileting, but the worst is the hallucinations, delusions and constant paranoia. He's on Namenda, Quetiapine Fumarate, and Donepezil, but they don't help with the worst parts. He receives disability as well as a pension so we can't get Medicaid. I tried applying with Social Services and was denied - too much income. Also applied with the local aging service and no funding so no help there. I'm at the end of my rope. I just want to run away from the whole situation. He's 62 and I'm 53 and so depressed, lonely, burnt out but don't know where to turn. He's also in denial - doesn't think he has a disease, but still takes his pills at least. Any advice? suggestions? Only family is his daughter who has a two month old baby, her baby's father and his two daughters plus she works 40 hours a week - no help there. He has a sister, but she's in NC and can't take him. Please help!
We are in a terrible spot financially. We overextended ourselves on our home and it’s sucking us dry. It would be so much work to sell it, and like you, I have no help. I have spent hours on the phone and internet looking for help. Like you, there is none. Social Security b***h told me we weren’ t getting any more from the Government than we already get.
So what do i do? I make my own peace. Sometimes I’m successful and sometimes I’m not. I knit. I read. I spend time with my grands and kids. I head to bed at 10PM for alone time. I have a dog I love. I also vent and ask for help on this wonderful site. Take care of yourself. I’m sending hugs.
Too much income can be solved with a Miller Trust. Need an eldercare attorney for that, also because you, the Community Spouse needs income.
Have you thought of selling stuff on Easy?
if you can do complicated patterns i think you might do well.
Just a thought.
Miller Trusts have been suggested to me as well, but we absolutely need every penny we get now, and more. However, at some point I may just explore the idea.
Lorijo, take a few hours and go on the Internet. There may be some help out there for you. You never know. I’m crossing my fingers for you!
From this website.
payingforseniorcare.com/medicaid-pooled-income-special-needs-trusts.html%3ftmpl=amp
We know you meant LoriJo. This is a new computer or website glitch. I hate it when they put different words automatically. It happens so often, that I think I will stop trying to correct mine from now on.