((My 86-year-old in-laws, MIL & DIL who still live independent by themselves, but require some help, their 2 acres bordering our 24 acres which is 30 min from town...))
My husband is bearing all the weight of his parents’ needs that keep adding up. He has had Stage 4 Kidney Cancer & Metastases’ the last 5+ years. Originally he was given 3-5 years after his kidney was taken out right away. With a growth nearly a year ago, he’s also has had 2/3 of his right lung removed and continues to have breathing problems! Although he doesn’t look sick!!! His parents also have a daughter that lives in S.Dakota, one other daughter that is deceased, and the youngest daughter who lives in our state Oregon, but about 4 hours away on the coast. She avoids hearing about their aging needs and doesn’t even want to discuss the difficulties that are coming up, saying that it makes her feel guilty for not living closer. I am to the point of telling her to get her big girl panties on and get involved, for crying out loud!! My husband is emotionally wearing down and no one sees that!!!
Their mom is getting frail doesn’t drive anymore, and has many multiple health issues. Their dad is having problems with his heart again. He’s had 2 heart attacks in the past, also having had it restarted a couple of times (1 recently) but they want to put in a pace maker soon. He is still driving but shouldn’t be!!! Yes my husband and I have talked about what would probably happen if we turned him in. (we’d be driving them to all their appt’s, and church activities) I just retired early by 1-1/2 yrs to spend more time with my husband who’s 65, before he does get worse (he’s terminal). I’m feeling defensive and yes angry, not with the folks but with my sister-in-law.
What would you do??? Sincerely, Chris
It looks to me, given the geographic arrangements, that the original understanding was that you and your husband would take of your in-laws' needs so that they could remain in their own home adjacent to your property. Clearly that arrangement is becoming unworkable, but what are the alternatives? Can your in-laws move to a facility when their care needs become too great? Why is that not on the table at least? What about getting them some paid help to take the burden off your husband and you? Is that an option? Are you expecting your sister-in-law to uproot her life and move in with her parents long-term to help out? That would be a blessing for you and your husband, and perhaps his parents, but what about her? It doesn't sound like that's an arrangement that she agreed to, or is willing to agree to.
This situation appear to be heading towards a crisis point, that will occur when your husband dies or become too ill to assist his parents any longer. At that point, either the siblings will step in to provide alternate care for their parents, or you will have to make the hard decision to continue or discontinue providing their care alone. It wouldn't be fair for you to be stuck holding the ball this way, but neither is it fair, in my opinion, to expect your sister-in-law to magically make the problem go away. JMHO.
If his folks have money hire outside help or get them to assisted living. No money, apply for Medicaid.
I take care of similar parents. They should have moved off their farmette 10 years ago. Fortunately I'm pretty healthy but I really resent having to spend my retirement as a caregiver. I can't imagine doing this if I were sick. If I go down my folks would end up wards of the state.
Spending time with him would be your priority, understandably.
It may help if you investigate local services providers ahead of time. What transportation options are there? Handi-Dart, Taxi, church volunteers? Speak with their minister and ask the church for help. Can the Church provide rides on Sunday?
If your father-in-law has a crash (it would not be an accident, he is an accident waiting to kill someone) and someone other than him is harmed, your guilt will be much greater than telling him he cannot drive.
Do either of the seniors have veterans benefits they can access for help around the home and yard? Do any of the local grocery stores or pharmacies deliver? I know you said you are 30 minutes out of town, but in my community that is nothing for delivery services.
What do you think would be reasonable for your sisters-in-law to do to help? One is across the country, the other across the state. Who has POA for your in-laws? Is this something one of the sisters can manage?
Would it be better for the in-laws to move closer to town? What about you, when your husband dies, will you want to move closer to town or somewhere else all together?
I work full time and my husband's work varies from full to part time.
My husband makes 6-7 trips a day to drive FIL to various daily events. My husband never stops. my sister in law who lives 35 minutes away helps 1-2 times monthly but not more than that since she is further away.
Some of the trips can be consolidated or the adult grandchildren
SIL's children can ease the burden for us. My husband cant reason with my FIL and feels bad about not doing what he wants.
I feel SIL can help more, she has never worked and uses the too far away exuse,
Even thought we want to help elderly parents its not unfair to set boundaries. This will save your health and sanity.
You might want to call an elder ombudsman if you have one in your state. They may be able to help in directing you on what is available for the parents. Or, if asking your siblings to take over care does not help, you might want to engage an Elder lawyer to draw up an official letter to the siblings to take over the care of their mother within a specific time, due to the condition of your husband. Sometimes people do not listen until an official doc is received. Worth a try!
If parents call and need something that has been crossed off the list hubby should say calmly "sorry, I can't possibly do that". What is happening here is that your husband is enabling his parents to continue on with their own life-style while you and your husband had to change your own.
Plus there is always that child/adult dynamics. In hubby's parent's eyes and mind, he is still a person who can do everything. I ran into that with my own very aging parents who didn't want to move from their house nor hire any help. Even with me waving my Medicare card and AARP membership it went in one ear out the other.... I was still that 20 year old who could do everything, instead of a senior citizen myself with my own age decline issues :P
Every sibling needs to be a team player, find out what they are good at doing for their parents and let that be their job. Don't tell them what to do, ask them what they would like to do. Every little bit helps.
2) ck medicaid to see if they are eligible
3) ck state agencies for help (in KY we have an agency who can come in a few hours a week to help w/cleaning, shopping, laundry, etc)
4) do they have the resources for AL....if not, can the non-present daughters help pay for it?
5) can the non-present daughters take them in for several weeks a year to give you a break?
6) when my grandmother needed help, my mother was the primary caregiver, but her other two children flew in for one week a quarter to help out, so that gave Mom 8 weeks break total, which helped (my sister and I also helped out). Of course, if the sisters work full time, would not be able to come that much.
7) driving: we had the family doctor tell my parents (who are now in assisted living) that they were no longer allowed to drive. We were on the verge of bringing the police in (to watch my mom driving and tell her she could no longer drive) but she voluntarily stopped after we told her she could very easily kill someone else (she ran a red light and almost hit a friend of mine, who called me)
If the assisted living is something they can afford, get all three children there and just tell them they are worrying you to death....my parents fell so much, and my sister and I couldn't get them up by ourselves so would have to call ems. Mom finally agreed to assisted living (Dad has Alzheimers) and now she loves it as she doesn't have to cook, clean, etc, and THEY take them to Dr's appts, etc....sister and I go with them sometimes, but the van does the actual transportation (they both need wheelchairs...are 90 and 92)
GOOD LUCK....is such a difficult time!!!!
Time to move to a situation where they dont need you.. who is going to care for them when your husband dies. which is seems is sooner than them.
Organise for someone to take them to appointments and once a week shopping, NOT you. if they demand to stay where they are.
Five years ago it would have been so ideal you next door to help with some chores, that pretty pink picture of caring for the older generation and things rosey.. but the black n white facts are there. and you are not being selfish wanting time with your husband in his last few years.
And get the old man off the road. How will you feel when he has a medical event and kills a young family, sadly he will survive and have more medical problems and expenses and a guilt to carry.
Tell the siblings what is going to happen, and Im sure they wont jump forward to change it.
Its so similar to what happened to my sister 30min away from my parents, tho they were in town. who landed up spending 2 x days week trying to help but it all turned to custard .
I feel for you in this position, when by rights you should be having 100% focus on your own needs and wants at this time. I hope you get it
Family members don't understand or care that you put your life on hold and that it would have cost them at the least 1000 or so a month ( their part) if she had gone to nursing home.
Long post, just to say, she can help financially for care to ease some of your stress. My Sil seemed to think mom had only one child. Please do something soon and have a talk with her. Best wishes to you and your husband
balancedCaring – We really don’t believe things are critical yet. But yes, that could change at any time!!!
CarlaCB – What I expect SIL’s to do? My husband & I tried to start a family blog so that everyone could be on the same page! Didn’t work. 2nd SIL said we were trying to make her feel guilty by filling them in about what’s going on, what’s been done, what needs to be done etc. She’s been difficult to get involved (basically, she can’t handle it). There was no “original understanding” with both home-sites neighboring for the last 20 years. We didn’t know how long we’d each be at our property. There’s never been an agreement about their care. It’s just as it is. A facility?, paid help ? My IL’s can’t afford to do anything, only surviving on SS & deferring taxes on their property, the 2 SIL’s are in pretty much the same predicament. Didn’t plan for their own retirement or any savings beyond their paychecks. We’re not at all hoping to magically make the problem go away for my husband or myself. The #2 SIL & BIL are close enough to spend a weekend helping out, every so often, or even if asking if there was anything they could help with!
DILburnout – I’ve already told my In-laws that if we still live here when something happens to my husband, I’m out of here the next day!!! It’s too remote, with no other neighbors within sight!!! I don’t do alone well anymore.
Fedupgiveup – We have gone on vacations and they do fine, (as far as we know) but we always wonder if they call – what it’s going to be!
JoAnn29 – 1 SIL just moved to SD a couple of months ago & struggled with her decision. She moved closer to two of her children and her only grandchildren. My FIL, when she was here, fought back about her “meddling”. 2nd/youngest SIL hasn’t been able to emotionally engage. Yes, I do have to make it clear to each of them, when I am left to face life grieving & alone, that they cannot count on me for anything as I find my way through grieving & being alone.
Llamalover47 - . . . “when he is so very ill himself” I have to tell you all, after his diagnosis, left kidney out, risky IL-2 treatments - with low success %’s & he was a positive responder, resulting in continued monitoring CT scans, then later a renewed growth of spot (metastases), removal of renewed growth of spot, in addition to 2/3 of right lung removed (because of location of spot), removal of growth, with low to moderate change of breathing challenges & stamina, CT scans now every 3 months to monitor spots left in his lungs. This has been the progress and although nothing much is noticeable to most friends & family, he looks just fine, in fact he looks great. If you were just meeting him, you’d have no idea that he had such serious health issues!!!
Nicenurse10 – SIL’s are not able to help financially.
rovana – no they are not living the true definition of “destitute” at this time, but let’s just say neither are they living their “preferred lifestyle”. Truly, they just get by and they have had to give up a lot over the last several years!! They live a very humble and meager lifestyle by necessity!!!
Tothill – They have no veteran status. No, no deliveries out here in the sticks! No one has POA at this time! It’s in the delicate issues list we & they are slowly wading through. Yes, they would be better off in town and we are working on an idea to help with that, but FIL is not ready to admit that he still can’t do it all. You are absolutely correct that something needs to be done to figure out his currant driving capabilities! Thank you for that push.
Windyridge – Medicaid is not a topic we can talk about yet. There’s a pride issue & they have expressed (my MIL is especially fearful) to not be put in a home. #2 SIL has mentioned that she’d have her mom live with her when the time comes.
Thank you all again for your thoughts & suggestions kindness ~ ChrisFeg
I'm not defending the sisters - I have siblings just like that. My oldest sister didn't even want to hear about my mother's issues - she felt that she was being guilt-tripped just by being told. The first year or two dealing with my mother's demands I was tearing my hair out, and none of my siblings were willing even to be a source of emotional support for me. I too have wondered why none of them could take a week's vacation and spend it taking care of Mom instead of just dropping in for a meal on their way to somewhere else when they happen to be vacationing in Florida. Eventually I had to pull way back because my anger and resentment was eating me alive.
I suggested paid help or placement in a facility because it's just not feasible to expect much help from people who live far away. Yes it would be nice if they would offer to do something, anything to help, but realistically, whatever help they could offer, short of moving in with your in-laws, would probably be nowhere near enough to solve the problem for your husband and you. And certainly not enough to solve the problem for you if your husband dies before either of his parents.
I hope other posters have some suggestions for you. This is a tough situation to be in.